Skip to main content

Get Involved

Get Involved

There are many ways to support awareness, research, and families affected by Jansen's disease. Your involvement helps drive progress and build a stronger, more connected community.

Join the Community

Connect with individuals and families affected by Jansen's disease, share experiences, and find support through our growing community.

Explore the community

Support Research

Help advance critical research efforts, including studies supported by national research organizations, aimed at improving understanding and treatment of Jansen's disease.

Learn about our research efforts

Partner With Us

We welcome partnerships with organizations, institutions, and companies that share our commitment to advancing research and supporting affected families.

View our partners

Volunteer / Help

Contribute your time, skills, or expertise to help with outreach, education, advocacy, or operational support.

Reach out to volunteer

Newsletter Signup

Stay informed about research progress, events, and ways to get involved by subscribing to our newsletter.

Newsletter signup coming soon.