Join the Community
Connect with individuals and families affected by Jansen's disease, share experiences, and find support through our growing community.
Explore the communityGet Involved
There are many ways to support awareness, research, and families affected by Jansen's disease. Your involvement helps drive progress and build a stronger, more connected community.
Connect with individuals and families affected by Jansen's disease, share experiences, and find support through our growing community.
Explore the communityHelp advance critical research efforts, including studies supported by national research organizations, aimed at improving understanding and treatment of Jansen's disease.
Learn about our research effortsOrganize or participate in fundraising efforts to support families and research initiatives. Community-driven fundraising plays a vital role in sustaining our mission.
We welcome partnerships with organizations, institutions, and companies that share our commitment to advancing research and supporting affected families.
View our partnersContribute your time, skills, or expertise to help with outreach, education, advocacy, or operational support.
Reach out to volunteerStay informed about research progress, events, and ways to get involved by subscribing to our newsletter.
Newsletter signup coming soon.
Cookie notice
We use essential cookies to keep this site secure and functional. If you allow analytics cookies, we use them only to understand usage and improve the site.
Learn more in our Privacy Policy